This journal was on G+, but can't seem to post there today. Find a summary of previous posts here.
It's 5:32 and I woke up the normally loud Lucian the cat this morning. I'm in the third week of my cold. The third week is always the hardest because I'm so tired of having the cold that its lingering can be crushing psychologically.
My brother Drew got this difficult flu too. He has had it for two weeks now and didn't sound good when he called yesterday to let me know he wouldn't be working on CureCancerStore.org since he couldn't get out of bed.
Today is the first day of Obama Care and I live in a state where anti-Obama care ads have been running night and day. I wouldn't wish the Big C on my worst enemies, but I do wish the people spending money on these ads could experience a week of worrying about not having health insurance with the knowledge that no health insurance means no care and no care means you die.
In the old system labels like CANCER could rule you OUT. You could become an untouchable, someone whose condition meant you would ruin an insurance company's bottom line. Insurance companies are interesting things. They make money NOT from the premiums paid but from the investments they make creating a strange dislocation from customers.
There is a reason Warren Buffet loves insurance companies. They are cash rich and if your quants work the numbers right the company can make mountains of money. Nothing wrong with making mountains of money UNLESS humanity is the sacrificial lamb.
Imagine you are in your forties, just heard you have cancer, but there is good news. There are treatments that will take you right to the brink of death, but those treatments will give you more TIME despite costing the GNP of a small island nation. There's a rub.
The rub is those treatments will save you and metaphorically kill you since the scarlet C you wear means you won't be able to afford insurance and so eventually your chronic condition will out. The question before the dreaded Obama Care for me was do I die NOW or wait until my savings ran out and die a little later.
Then President Obama did what so many have failed to do before. Create a system of national health care that almost every other major industrial country has had for years. I cried the night the man was re-elected because it meant the chances for me and millions of others in similar situations to have health care were better than if the other guy won.
If the measure of a country's greatness is its ability to have a disagreement we haven't been so great lately. I write this on the eve of a government shut down where we are being held hostage by fools playing at protests they don't understand. Congressmen and Senators have great health insurance FOR LIFE after all.
Every Obama Care attack ad creates worry all over. Here I am a man with cancer and I'm worried about health insurance. Cancer is tough enough. I shouldn't have to worry about whether the greatest country is willing to help me.
I've done my job. I made money, paid taxes and then, by whatever strange genetic hook and crook (my father has the same leukemia I do) ended up on the wrong side of the cancer stats. One in two men will find themselves similarly caught between rock and hard place.
But most of those men will be eligible for or already on Medicare, so they like senators and congressmen, have health insurance. Always found it interesting how many medicare recipients were among the protesting tea party faithful.
When I heard "cancer" and my name in the same sentence I was more than ten years from medicare. I was on COBRA during Martin's Ride and then COBRA, the ability to continue to buy my previous employes plan, ran out. The good news was I could get coverage.
The bad news was that coverage, due to my Big C status was $1247 a month. I paid that premium for six months before Atlantic BT's infinite mercy hired me as one of their Marketing Directors. deserves amazing KUDOS since not only did they hire me knowing I have cancer, but they've been instrumental in creating CureCancerStarter.org - our crowdfunding for cancer research platform that will launch in a matter of days (may not be Monday but sometime next week).
How do you pay that back? Add Jon, Mark and the amazing team at Atlantic BT to the long list of people I can't ever repay. Atlantic BT did what America was unwilling to do - insure me (lol). They didn't STOP there.
When I started talking about a crazy project to GIVE AWAY our expertise they listened and wanted to help. This was a significant act of faith since there are now 80 families whose lives, liberty and mortgages are tied up in Atlantic BT's ability to create great websites and make money.
If the true measure of a company is its ability to act heroically under pressure then Atlantic BT just passed that test. Much like me Atlantic BT is an unusual Philanthropist. There isn't so much backlog they can really afford to give several of their most talented programmers and $25K (really more like $50 if you add in they are paying me to pay them) to helping cancer patients.
Yet here we all are. Trying to do the right thing with the gifts and magic we've been granted. If we had 1/10 of the budget of the Obama Care attack ads we wouldn't have to worry, but we do worry.
We worry about creating something GREAT and then not finding an audience. We worry about what's next since the future can't be known. We worry about failing one more time when failure isn't an option. We worry about if we have done or will do enough.
Its 6:30 now and there's lots to do. Hope you will remember to HUG your children or significant other this morning. I will play with Lucian the opera singing cat and attend to the million and one things that must get done on the first day of "Obama Care" when my unemployed brother can finally buy the health insurance that will protect his most valuable asset - life itself.
If you've read this far you are a special person and one we hope will join our Buzz Team. Our ASK is minimal and your ability to help is HUGE. Here is the quick link to join the team and here is where you can learn more about the team: http://storyofcancer.org/cure-cancer-buzz-team/ .